My soul purpose for creating this blog……well it is for a number of reasons, but i only have one wish……and that is to have the gift of time, the chance to live.
my name is Lindsay, or Nerri as my friends call me. i am 33 years old, a university graduate, married my childhood sweetheart, and we share the three most amazingly precious children together 🙂 I was living my dream, until my life was shattered to pieces when i woke on the morning 7th of June 2009
I am “one in a million”, diagnosed with a rare autoimmune disease called Stiff Person Syndrome. I am rapidly deteriorating to the point that without much needed treatment, i am going to die
i would like to share my personal story, in the hope that i can raise awareness of how debilitating, dangerous and life threatening this horrendous illness is for me, This is my attempt , out of sheer desperation, to somehow get my voice heard, before it is to late.