My soul purpose for creating this blog……well it is for a number of reasons, but I only have one wish……and that is to have the gift of time, the chance to live.
my name is Lindsay, or Nerri as my friends call me. I am 33 years old, a university graduate, married my childhood sweetheart, and we share the three most amazingly precious children together🙂 I was living my dream, until my life was shattered to pieces when I woke on the morning 7th of June 2009
I am “one in a million”, diagnosed with a rare neurological disease with autoimmune characteristics , known as Stiff Person Syndrome (SPS). I am rapidly deteriorating to the point that without much needed treatment, I am going to die.
I would like to share my personal story, in the hope that i can raise awareness of how debilitating, dangerous and life threatening this horrendous illness is for me. This is my attempt , out of sheer desperation, to somehow get my voice heard, before it is too late.
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