This is me after my 2nd round of five days, three liter Plasma Exchange.
The result was incredible 🙂
After some confusion in 2013, a treatment plan was composed by my consultant from London and my Neurologist that was taking care of me at my local hospital.
It was decided I would have another three rounds of five days, three liter Plasma Exchange 4-6 weeks apart. Followed by three rounds of IVIG spaced four weeks apart. Then to take stock and consider Rituximab, as long term management.
As you can see in the photo, I had exceptional results from the 2nd Plasma Exchange in June 2012. This photo was taken at my beautiful cousin’s leaving celebration. I still needed physical support, but I did not need my wheelchair for very short distances. I could listen to music, enjoy being cacooned by my beautiful family. ……and the most magical thing of all, I danced to a song for the first time in four years. Granted, I had my girlys supporting me on each side of me. …..but I felt so free ….. I felt alive again.
It was like living my fairy tale once more……my nightmare was over, I could not have been more wrong .